When Marcy was 9, she was diagnosed with Von Recklenhausen which later was renamed to NF. She didn’t really know what it meant as a child and the impact of it didn’t materialize until her son, Jay, was diagnosed with it. Marcy graduated from ASU in 1980 with with a dual major in education; elementary and special education. She taught special education for 4 years, kindergarten for 4 years and fifth grade for 5 years. The remaining twenty-two years were in third grade. She taught in the Paradise Valley United School District in Phoenix.

It wasn’t until Marcy became pregnant with her son Jay that she began to notice the affects of NF. Small bumps began to grow during the pregnancy and continue to grow now. She has to wonder if her lack of find motor skills and athletics was also due to NF. Marcy also has epilepsy along with her NF and has had many seizures over the years as well due to epilepsy. Marcy and Jay were both involved in various fundraising and awareness campaigns during the 1980’s with NF, Inc. In 2015, Marcy and Jay attended the CTF NF forum in Scottsdale and were able to meet other families and people living with NF. Jay passed away from his brain tumor due to NF in 2020 and Marcy was able to donate his body and brain to continue NF research as his legacy.