Medical procedures have been a part of Eli’s life for his entire 14 years. When he was a baby, E was diagnosed with a rare eye condition, in which his retina detached at 12 months, leaving him ultimately blind in his left eye. His right eye has a small cataract that continues to be monitored. At 5, Eli was diagnosed with Neurofibromatosis type 2 (NF2), after a skin biopsy. Very young for a person, especially with a spontaneous case, to be diagnosed. This is when more procedures came about.

When Eli was 9 he had a C-5 tumor removed that was pressing on his spinal cord, and another at T-5 at age 11. MRI’s, audio exams, eye exams and numerous specialist visits across the country have been a common part of life. At age 13 when Eli’s hearing began to show decline and his right Vestibular Schwannoma (tumors on his auditory nerves which control hearing and balance) began to grow, he had cranial surgery in an attempt to preserve hearing. The family was unsure if Eli would wake up with any hearing at all in that ear, but thankfully, his hearing has remained stable after surgery.

Although the family is never free from appointments, change or worry, Eli is an amazingly well adjusted and resilient teen boy, who loves friends, skating, bike stunts, and to wear his earbuds, and thankfully, is still able to listen to music through both.